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Beacroft, M., & Dodd, K. (2011). ‘I Feel Pain’–audit of communication skills and understanding of pain and health needs with people with learning disabilities. British Journal of Learning Disabilities, 39(2), 139-147. Boden-Stuart, Z., Larkin, M. & Harrop, C., (2021), (Accepted/In press) In: Psychology and Psychotherapy: Theory, Research and Practice. Bone, R. C., Balk, R. A., Cerra, F. B., Dellinger, R. P., Fein, A. M., Knaus, W. A., Schien, R. H., & Sibbald, W. J. (1992). Definitions for sepsis and organ failure and guidelines for the use of innovative therapies in sepsis. Chest, 101(6), 1644-1655. Bradbury‐Jones, C., Rattray, J., Jones, M., & MacGillivray, S. (2013). Promoting the health, safety and welfare of adults with learning disabilities in acute care settings: a structured literature review. Journal of Clinical Nursing, 22(11-12), 1497-1509. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2), 77-101. Braun, V., Clarke, V., & Hayfield, N. (2019). ‘A starting point for your journey, not a map’. Nikki Hayfield in conversation with Virginia Braun and Victoria Clarke about thematic analysis. Qualitative Research in Psychology, 1-22 Burki, T. K. (2018). Sharp rise in sepsis deaths in the UK. The Lancet Respiratory Medicine, 6(11), 826. Critical Appraisal Skills Programme. (2018). CASP qualitative checklist. [online]. Gallop, K. H., Kerr, C. E., Nixon, A., Verdian, L., Barney, J. B., & Beale, R. J. (2015). A qualitative investigation of patients’ and caregivers’ experiences of severe sepsis. Critical care medicine, 43(2), 296-307. Government Ombudsman. (2009). Six lives: the provision of public services to people with learning disabilities Part one: overview and summary investigation reports. Retrieved from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/250750/0203.pdf Heslop, P., Blair, P., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2013). Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD). Bristol: Norah Fry Research Centre. Hesse-Biber, S. N. (2007). Handbook of feminist research: Theory and praxis. SAGE publications. Iacono, T., & Davis, R. (2003). The experiences of people with developmental disability in emergency departments and hospital wards. Research in developmental disabilities, 24(4), 247-264. IHME (The Institute for Health Metrics and Evaluation). (2020). Sepsis associated with 1 in 5 deaths globally, double previous estimate. Retrieved from http://www.healthdata.org/news-release/sepsis-associated-1-5-deaths-globally-double-previous-estimate Iwashyna, T. J., Ely, E. W., Smith, D. M., & Langa, K. M. (2010). Long-term cognitive impairment and functional disability among survivors of severe sepsis. Jama, 304(16), 1787-1794. Kim, H. I., & Park, S. (2019). Sepsis: Early recognition and optimized treatment. Tuberculosis and respiratory diseases, 82(1), 6-14. Martel, T., Melmer, M. N., Leaman, S. M., Kassen, N., Kozlowski, S., Pangia, J., Gutovitz, S., & Jehle, D. (2020). Prehospital Antibiotics Improve Morbidity and Mortality of Emergency Medical Service Patients with Sepsis. HCA Healthcare Journal of Medicine, 1(3), 10. Mayo Clinic (2018) Sepsis. Retrieved from: https://www.mayoclinic.org/diseases-conditions/sepsis/symptoms-causes/syc-20351214 Mencap (2004) Treat me right!– better healthcare for people with learning disabilities. London, Mencap. Mencap. (2007). Death by indifference Following up the Treat me right! Report. London, Mencap. Mencap (2017). Treat me well – simple adjustments make a big difference. Retrieved from: https://www.mencap.org.uk/sites/default/files/2018-07/2017.005.01%20Campaign%20report%20digital.pdf Michael, J., & Richardson, A. (2008). Healthcare for all: the independent inquiry into access to healthcare for people with learning disabilities. Tizard Learning Disability Review. Mostel, Z., Perl, A., Marck, M., Mehdi, S. F., Lowell, B., Bathija, S., Santosh, R., Pavlov, V. A., Chavan, S. S., & Roth, J. (2020). Post-sepsis syndrome–an evolving entity that afflicts survivors of sepsis. Molecular Medicine, 26(1), 1-14. Prasher, V., & Janicki, M. (2008). Physical health of adults with intellectual disabilities. John Wiley & Sons. Rose, J., Malik, K., Hirata, E., Roughan, H., Aston, K., & Larkin, M. (2019). Is it possible to use interpretative phenomenological analysis in research with people who have intellectual disabilities?. Journal of Applied Research in Intellectual Disabilities, 32(5), 1007-1017. Seymour, C.W., Gesten, F., Prescott, H.C., Friedrich, M.E., Iwashyna, T.J., Phillips, G.S., Lemeshow, S., Osborn, T., Terry, K.M., & Levy, M.M. (2017). Time to treatment and mortality during mandated emergency care for sepsis. New England Journal of Medicine, 376(23), 2235-2244. Singer, M., Deutschman, C.S., Seymour, C.W, Shankar-Hari, M., Maryne, D., Bauer, M., Bellomo, R., Bernard, G.R., Chiche, J.D., Coopersmith, C.M., Hotchkiss, R.S., Levy, M.M., Marshall, J.C., Martin, G.S., Opal, S.M., Rubenfeld, G.D., Poll, T.V.D., Vincent, J.L., & Angus, D.C (2016). The Third International Consensus Definitions for Sepsis and Septic Shock (Sepsis-3). Jama, 315(8), 801-810. The Learning Disabilities Mortality Review (LeDeR) Programme. (2016-2017). Retrieved from https://www.hqip.org.uk/wp-content/uploads/2018/05/LeDeR-annual-report-2016-2017-Final-6.pdf The Learning Disabilities Mortality Review (LeDeR) Programme. (2018). Retrieved from https://leder.nhs.uk/images/annual_reports/LeDeR_Annual_Report_2018_published_May_2019.pdf Tuffrey‐Wijne, I., Abraham, E., Goulding, L., Giatras, N., Edwards, C., Gillard, S., & Hollins, S. (2016). Role confusion as a barrier to effective carer involvement for people with intellectual disabilities in acute hospitals: findings from a mixed‐method study. Journal of advanced nursing, 72(11), 2907-2922. UK Standards for Public Involvement. (2019). Better public involvement for better health and social care research. Retrieved from https://drive.google.com/file/d/1U-IJNJCfFepaAOruEhzz1TdLvAcHTt2Q/view