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HIV care and interdependence in Tanzania and Uganda

Evans, R. and Atim, A. (2015) HIV care and interdependence in Tanzania and Uganda. In: Barnes, M., Brannelly, P., Ward, L. and Ward, N. (eds.) Ethics of care: critical advances in international perspective. The Policy Press, Chapter 12. ISBN 9781447316510

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Abstract/Summary

Within many communities in East Africa, people living with HIV are increasingly involved in delivering home-based care and healthcare for family members and peers. Such interdependent caring relations blur conventional boundaries between ‘care-givers’ and ‘care-recipients’, and constructions of 'service users' as dependent, passive recipients of healthcare. The participation of people living with HIV in healthcare provision, home-based care and peer support groups can enhance ‘relational autonomy’ for both care-givers and care-recipients, although such initiatives often play out in highly gendered ways. The care and support of people living with HIV, particularly the emotion work of caring, however, continues to be associated with women's and girls' assumed 'natural' nurturing roles and has been largely devalued and overlooked in HIV policy and practice to date.

Item Type:Book or Report Section
Refereed:Yes
Divisions:Faculty of Science > School of Archaeology, Geography and Environmental Science > Human Environments
Faculty of Science > School of Archaeology, Geography and Environmental Science > Department of Geography and Environmental Science
ID Code:40521
Uncontrolled Keywords:HIV care and support People living with HIV (PLHA) Service users Participation in healthcare East Africa
Publisher:The Policy Press
Publisher Statement:This is a post-peer-review, pre-copy edited version of a chapter published in Ethics of care: critical advances in international perspective. Details of the definitive published version and how to purchase it are available online at: https://policy.bristoluniversitypress.co.uk/ethics-of-care.

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