Accessibility navigation

The development of schematics to illustrate women’s experiences with adjuvant hormone therapy in the treatment of breast cancer

AlOmeir, O., Patel, N. ORCID: and Donyai, P. ORCID: (2022) The development of schematics to illustrate women’s experiences with adjuvant hormone therapy in the treatment of breast cancer. Patient Preference and Adherence, 16. pp. 2639-2647. ISSN 1177-889X

Text (Open Access) - Published Version
· Available under License Creative Commons Attribution Non-commercial.
· Please see our End User Agreement before downloading.

[img] Text - Accepted Version
· Restricted to Repository staff only


It is advisable to refer to the publisher's version if you intend to cite from this work. See Guidance on citing.

To link to this item DOI: 10.2147/PPA.S368636


Objectives: Non-adherence to adjuvant hormone therapy prescribed orally in the treatment of breast cancer is complex as the literature has shown. Many women find it hard to adhere to the hormonal medicines they are prescribed and expected to take for at least 5 years following the initial management of their breast cancer. Arguably, communicating other women’s ‘trials, tribulations, and triumphs’ with medication-taking could help newly-diagnosed patients to better prepare for the journey ahead. Our objective was to visually represent women’s experiences with these medicines using data synthesized in the literature. Methods: Three schematics were drawn for each phase of medication-taking, namely, starting out, adherence, and cessation. The schematics were validated by interviewing a panel of healthcare professionals (n=10) and calculating a Content Validity Index (CVI). The edited drawings were discussed with a separate panel of breast cancer survivors (n=14) whose responses were elicited qualitatively in one-to-one interviews. Results: A total of 76 individual pictograms were drawn across the three schematics. The 13 pictograms that had an item-level CVI<0.8 were modified according to feedback resulting in three final schematics with an overall CVI of 87%, 87% and 80%, respectively. Conclusion: Synthesised summaries of women’s experiences with oral hormone therapy for breast cancer were visualised via three validated schematics. The schematics could aid patient-professional communication to help anticipate and tackle negative experiences and support decisions to take hormone medication in breast cancer.

Item Type:Article
Divisions:Interdisciplinary Research Centres (IDRCs) > Centre for Health Humanities (CHH)
Life Sciences > School of Chemistry, Food and Pharmacy > School of Pharmacy > Pharmacy Practice Research Group
ID Code:106610
Publisher:Dove Medical Press


Downloads per month over past year

University Staff: Request a correction | Centaur Editors: Update this record

Page navigation