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Autism community priorities in diverse low-resource settings: a country-wide scoping exercise in India

Dey, I., Chakrabarty, S., Nandi, R., Shekhar, R., Singhi, S., Nayar, S., Ram, J. R., Mukerji, S. and Chakrabarti, B. ORCID: https://orcid.org/0000-0002-6649-7895 (2024) Autism community priorities in diverse low-resource settings: a country-wide scoping exercise in India. Autism, 28 (1). pp. 187-198. ISSN 1461-7005

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To link to this item DOI: 10.1177/13623613231154067

Abstract/Summary

While studies to map the priorities of the autistic community have been undertaken in some high-income countries, there has been little or no such systematic assessment in the global south. India alone is home to an estimated >5 million autistic individuals. To address this gap in the literature, this study conducted a survey of the Indian autism community on their priorities for three areas: skills training, intervention and research. Individuals with a clinical diagnosis of autism spectrum disorders and parents/guardians of autistic individuals were invited to take part in the study. Data from 280 respondents were collected online and followed up with interviews on a subset (n = 40) chosen through stratified random selection. Results highlighted a unanimous prioritisation for self-help skills as the most important area in skills training, as it was considered the foundation for acquiring all other skills. Speech and language therapy was identified as the most important intervention for autistic individuals. Within research, identifying the most effective ways for the community to support autistic people was given the topmost priority. Researchers, clinicians and policymakers may use these insights to develop services and shape future research that is more in accord with the community’s needs.

Item Type:Article
Refereed:Yes
Divisions:Interdisciplinary centres and themes > ASD (Autism Spectrum Disorders) Research Network
Life Sciences > School of Psychology and Clinical Language Sciences > Department of Psychology
Life Sciences > School of Psychology and Clinical Language Sciences > Psychopathology and Affective Neuroscience
ID Code:111459
Publisher:SAGE Publications

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