Positive visibility: demystifying Albinism in Sierra Leone

Baker, C., Dumbuya, A., Kamara, M. O., Snow, S. and Amoke, K. ORCID: https://orcid.org/0000-0003-2462-665X (2026) Positive visibility: demystifying Albinism in Sierra Leone. International Journal of Disability and Social Justice, 6 (1). pp. 31-49. ISSN 2732-4044 doi: 10.13169/intljofdissocjus.6.1.0002

Abstract/Summary

There has been a marked lack of international attention toward lived experienc es of albinism in Sierra Leone, which is one of the poorest countries in the world. Albinism is a relatively rare recessive genetic condition that has profound impli cations in a context in which access to healthcare and practical support is lim ited. We draw on the findings of fieldwork interviews undertaken as part of our recent study “Demystifying Albinism in Sierra Leone” to highlight the challenges faced by people with albinism, including lack of access to education, healthcare, and stigmatization because of the beliefs and misconceptions associated with the condition. To counter the negativity so often associated with albinism and reported in scholarship and in the media, our project drew on these narratives and photographic images of albinism to develop effective advocacy materials in partnership with the Sierra Leone Association for People with Albinism. The project also included a series of public engagement events to enhance under standing, reduce misconceptions and stigmatization, and improve access to available healthcare provision. Here, we discuss the importance of the positive visibility of albinism and the work of stakeholders, including albinism associations and NGOs, in addressing the practical challenges faced by people with albinism in Sierra Leone, underlining the need for a concerted effort at all levels of society to ensure that people with albinism can fulfill their potential and live in security.

Item Type	Article
URI	https://centaur.reading.ac.uk/id/eprint/129715
Identification Number/DOI	10.13169/intljofdissocjus.6.1.0002
Refereed	Yes
Divisions	Arts, Humanities and Social Science > School of Literature and Languages > Languages and Cultures
Publisher	Pluto Journals
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